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ALS Challenge… Facts about ALS

I know everybody around the globe has been seeing the ALS Ice Bucket Challenge. I was challenged a few times (Anthony Thomas, Jarvis Harris and Deon Oden), and I wanted to do it myself because it seemed like fun (and it is for a great cause). So usually before I do anything, I like to read up on the facts. I knew that ALS was for Lou Gehrig’s Disease, but that was the extent of my knowledge on the disease.

Amyotrophic lateral sclerosis (ALS) – is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed. (http://www.alsa.org/about-als/what-is-als.html)

Social media helped the ALS Association (a Washington based nonprofit organization that funds global research to find treatments and a cure for ALS) raise $41.8 million in donations from July 29th to August 21st of this month.  Let that sink in for a minute $41.8 million!!!  Now let me give you some fun facts…

  • Based on U.S. population studies, a little over 5,600 people in the U.S are diagnosed with ALS.
  • It is estimated that at any given time 30,000 Americans have the disease(population of the U.S. is a little over 300 million people according to the 2012 census).
  • 60% of the people with ALS in the database are men.
  • 93% of the patients in the database are Caucasian.

 

In lieu of these findings, I have opted out of doing the Ice Bucket Challenge.  It’s crazy because the media will make us divert our attention and not focus on the real matters at hand.  We are on the verge of a racial war and instead of raising money to help the Mike Brown family, the Trayvonne Martin family, or even raising money for cancer and sickle cell (which both affects the black community) we are on social media raising money for ALS which VERY RARELY affects African Americans.  We have seen all the celebrities doing it (Lebron, Kevin Hart, Oprah, Tyler Perry, Chris Brown, August Alsina, Ashanti… and the list goes on and on) but I seriously wonder if they have ever personally met anybody with ALS???…  Don’t worry, I’ll wait.

So, I challenge you to do some research before jumping head first into the Ice Bucket challenge, or any other challenge. I am in no way, shape or form trying to take anything away from the ALS disease, but how about coming together and fighting for a cause that will help our communities? Finding a way to bring justice to the Brown family? Finding a way to stop all this racial profiling? Finding a way to be equal with White America? Supporting your black owned businesses? That’s what I would like to challenge all of you to do (including White America). I do not want anybody to take this as a racial blog… I am just putting the facts out there, and fact is, we has African American support White America daily! When can we get some reciprocity???

BLOG WITH ME???

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